This blog is going to be short, sweet and to the point as not much has changed recently.
Here we go:
My CAR-T treatment is 100% ready for me. The cells were successfully modified into cancer killing warriors and are at the Mayo Clinic waiting for me.
The past three days I completed outpatient chemotherapy to deplete my bodies current cell count to essentially make room for the new cells to be reintroduced. More chemo, more of the same side effects. It’s nothing you haven’t heard before, but hopefully that was the last time I will ever have to do chemotherapy! There is a silver lining.
I will be admitted to the hospital on September 10th to have my cells placed back into my body.
From what I have gathered after talking to some people, this seems to be a confusing process for people to comprehend.
I am not having a surgery, I am not having a transplant, nor am I going to be quarantined.They literally get my bag of cells, connect them to my port and infuse them into my body. The whole process takes about 30 minutes. It’s not as crazy as it sounds.
The reason I have to stay in the hospital for so long (one week minimum, probably closer to two weeks) is because of the drastic side effects that accompany the procedure in the following days. I mentioned all of these side effects in my previous blog so you can save me some time from re-explaining myself and read that blog or just google CAR-T side effects yourself. Thanks.
Once the side effects start to go away, I will be cleared to go home. I will still have roughly six to eight weeks of recovery once I get home, but we should begin to see positive results during this time.
Once I am admitted on the 10th, I am not planning on posting any updates for quite some time. Number one, I will need to focus on healing and getting better. Number two, we won’t have significant results if the CAR-T has even worked for at least a month after the infusion.
We are planning on having family visit during this time as well and are asking for space as we endure the road ahead.
In the meantime, stay in touch, visit again and witness cancer through my lens and keyboard.
Until next time…